Beamer Hughes Foundation
353 Widgedon Landing
Hilton, NY 14468

Beamer Hughes Foundation

The Beamer Hughes Foundation is named in honor of Thomas Hughes, II, or Beamer, as he was affectionately known throughout his life. Beamer passed away from muscular dystrophy in 2008 but his caring, self-less and giving legacy continues to live on by providing vital equipment and services to children and adults with muscular dystrophy. When you think of muscular dystrophy, you may think of children in wheelchairs who have this disease. I want you to know that muscular dystrophy affects children and adults and can strike at any age without warning or reason. Currently, there are 23 different types of muscular dystrophy, including some you may have heard of such as Duchenne and A.L.S. (Lou Gehrig's Disease). The mission of the Beamer Hughes Foundation is to provide children and adults with muscular dystrophy the vital equipment and services they need to live active and fulfilling lives. The equipment includes leg braces, wheel chairs, power chairs, stair and bed lifts, ramps, physical therapy, water therapy, doorway and bathroom modifications, and specialized communication devices. Vital services include vaccinations, neuromuscular disease appointments/check ups, support groups, and one week of summer camp for all children (ages 6-21 years of age) with muscular dystrophy which is held locally at the Rotary Sunshine Camp in Rush, NY at no cost to them or their families. While fighting the devastating effects of muscular dystrophy, Beamer, along with our family and friends began raising money to fund equipment and services for children and adults with muscular dystrophy beginning in 1998. All funds raised and all donations received provide children and adults with any form of muscular dystrophy and living in Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Wayne, Wyoming and Yates counties with the equipment and services mentioned above. In addition, the Beamer Hughes Foundation has funded and provided the Neuromuscular Disease Clinic at Strong Memorial Hospital with: A high-capacity platform scale, which enables people with muscular dystrophy to be weighed while seated in their wheelchair or power chair. It also allows those who are able to walk to be weighed as well. The scale is used by hundreds of patients each week. Getting accurate weights is critical for patients at risk for swallowing dysfunction and malnutrition. Additionally, the medical staff prescribes weight-based medications and accurate patient weights allow for better management of those medications. Elevated chairs for patients to use in the Neuromuscular Disease Center eases the ability of people with muscular dystrophy to sit in a chair as their hip and leg muscles are severely weak from the effects of the disease. Traditional height chairs are almost impossible for patients with muscular dystrophy to get out of, and not everyone who has muscular dystrophy is in a wheelchair or power chair. To learn how the Beamer Hughes Foundation has and continues to change lives for children and adults in our community with muscular dystrophy, please check out our web site at (and click on Thank You section) and/or visit our Facebook page. Sincerely, Stephanie Hughes Beam...the gift that keeps on giving!

We focus on: Human Services, Health

Where we are: Genesee, Livingston, Monroe, Ontario, Orleans, Seneca, Wayne, Wyoming, Yates

Back to Not-For-Profits